Palliative and End of Life Care for Children and Young People

Home, Hospice and Hospital
2. Auflage 2012
ISBN: 978-0-470-65614-3
Verlag: Wiley

Buch, Englisch, 200 Seiten, Format (B × H): 170 mm x 244 mm, Gewicht: 359 g

"Anne's contribution to our understanding of the needs of young people with cancer has been unparalleled and without her extraordinary insights our services would be that much poorer."
From the foreword by Simon Davies, CEO Teenage Cancer Trust

This topical and timely text provides valuable insights into the choices and experiences of palliative and end of life care for young people with cancer and other life limiting illnesses. With a focus on palliative care provision across a range of different clinical settings, this comprehensive new resource explores care in the home, the hospice and hospital. It looks at how and where families and young people can access palliative care, and what support is offered to attain their preferred place of death. Bereavement support for families is discussed, as well as a discussion of multi-disciplinary work, interagency co-operation and resource issues.

This will be essential reading for community children's nurses, specialist palliative care teams, children's hospices, school nurses, social workers and student nurses as well as families.

* A comprehensive resource on end of palliative are provision for children and young adults with cancer and other life limiting illnesses

* Timely and topical, tying in with the latest Department of Health palliative care strategy 'Better Care: Better Lives'

* Written in an accessible style that does not assume either detailed medical or theoretical knowledge

* Explores palliative care provision in a range of different clinical settings including the home, hospice, and hospital

* Provides valuable insights into the experiences of parents, children and young people

Autoren/Hrsg.

Grinyer, Anne

Fachgebiete

• Medizin | Veterinärmedizin Medizin | Public Health | Pharmazie | Zahnmedizin Pflege Palliativpflege, Sterbebegleitung, Hospiz
• Medizin | Veterinärmedizin Medizin | Public Health | Pharmazie | Zahnmedizin Pflege Kinderkrankenpflege
• Sozialwissenschaften Soziologie | Soziale Arbeit Soziale Arbeit/Sozialpädagogik Soziale Arbeit/Sozialpädagogik: Familie, Kinder, Jugendliche
• Sozialwissenschaften Soziologie | Soziale Arbeit Soziale Arbeit/Sozialpädagogik Soziale Arbeit/Sozialpädagogik: Kranken-, Alten- und Behindertenhilfe

Inhaltsverzeichnis

Participants viii

Foreword xii

Preface xiii

Acknowledgements xv

Abbreviations xvi

1 Palliative and End of Life Care for Children and Young Adults 1

2 Home-based Palliative and End of Life Care 15

3 Hospice-based Palliative and End of Life Care 49

4 Hospital-based Palliative and End of Life Care 87

5 Preparation for the End of Life, Bereavement and Emotional Support 117

6 The Implications for Policy and Practice 155

Appendix: Methodology 169

References 175

Index 181