Challenging Assumptions Around Dementia

User-led Research and Untold Stories
1. Auflage 2023
ISBN: 978-3-031-27222-6
Verlag: Springer International Publishing

Buch, Englisch, 146 Seiten, HC runder Rücken kaschiert, Format (B × H): 153 mm x 216 mm, Gewicht: 328 g

This open access book explores the expectations surrounding dementia, what it ‘looks like’ and how people have been treated by others. It aims to raise awareness of the different types of dementia, and how they impact the brain, body, and lived experience, including experience of Alzheimer’s disease, Vascular Dementia, Posterior Cortical Atrophy, Frontotemporal Dementia, Semantic Dementia, and Lewy Body Dementia. The co-authors reflect on their experience with informal and formal care, before finishing with a focus on the spectrum of dementia research from clinical trials to user-led research. Throughout the book, co-authors have shared personal stories of how dementia has affected them and people with lived experience of dementia share what they wish people knew about living with the disease. 

Co-produced by people with lived experience of dementia, academics and health care professionals, this book is an accessible resource about dementia from the perspective of people actively involved in the field and essential reading for healthcare professionals wishing to learn more about the experience of this neuroprogressive condition, as well as policymakers, and members of the public.

Zielgruppe

Research

Autoren/Hrsg.

Ashworth, Rosalie

Henry, Winnie

Fyvel, Sue

Lamont, Myra

Hill, Alyson

Houston, Agnes

Maddocks, Chris

Hay, Stuart

Qureshi, Masood

Ross, David

Robertson, Martin

Gilder, Willy

Wilson, Fred S.

Fachgebiete

• Medizin | Veterinärmedizin Medizin | Public Health | Pharmazie | Zahnmedizin Klinische und Innere Medizin Neurologie, Klinische Neurowissenschaft
• Sozialwissenschaften Psychologie Psychologische Disziplinen Gesundheitspsychologie
• Interdisziplinäres Wissenschaften Wissenschaften Interdisziplinär Neurowissenschaften, Kognitionswissenschaft
• Medizin | Veterinärmedizin Medizin | Public Health | Pharmazie | Zahnmedizin Klinische und Innere Medizin Geriatrie, Gerontologie
• Sozialwissenschaften Psychologie Psychotherapie / Klinische Psychologie
• Sozialwissenschaften Psychologie Psychologie / Allgemeines & Theorie Psychologische Forschungsmethoden

Inhaltsverzeichnis

1. Coproducing a book on dementia research.- 2. Taking part in Alzheimer’s disease research.- 3. Taking part in Vascular dementia research.- 4. Taking part in Fronto-Temporal dementia research.- 5. Taking part in Parkinson’s dementia research.- 6. Taking part in dementia with lewy bodies research.- 7. Taking part in PCA dementia research.- 8. Lessons for future research in dementia.

Über Autor(innen)

Dr Rosie Ashworth leads Partners in Research for NRS Neuroprogressive and Dementia Network, UK. As a research psychologist, Rosie is passionate about co-production, ethics, and actively involving people with lived experience in research. She is also the co-lead for ENRICH Scotlands ‘Patient and Public Involvement’ group RICH (Research in Care Homes) Voices, a Fellow with Advanced Higher Education, an advisor to the Dementia Enquirers, and a volunteer for About Dementia.

Partners in Research co-authors including Agnes Houston, Chris Maddocks, David Ross, Fred S. Wilson, Masood Qureshi, Martin Robertson, Myra Lamont, Stuart Hay, Sue Fyvel, Willy Gilder, Winnie Henry, and Alyson Hill.