Adelson Dwarfism

Medical and Psychosocial Aspects of Profound Short Stature
Erscheinungsjahr 2005
ISBN: 978-1-4214-0366-3
Verlag: Johns Hopkins University Press
Format: EPUB
Kopierschutz: Adobe DRM (»Systemvoraussetzungen)

E-Book, Englisch, 0 Seiten, Format (B × H): 152 mm x 229 mm

This landmark volume is the first to trace the exciting developments in the field of dwarfism research and treatment over the past century—particularly during the past fifty years. Dr. Betty M. Adelson, a psychologist, has unearthed and synthesized the most significant information about dwarfing conditions, from articles written a century ago to current books and specialized databases.

Highlighting the outstanding contributions of Dr. Victor McKusick and several of his colleagues, Dr. Adelson reveals how dwarfism specialists have helped redefine the nature of medical care—transforming it from an authoritarian enterprise into a holistic, collaborative venture among physicians, affected individuals, and their families.

The parent of an adult dwarf daughter, Adelson examines the social forces that affect the dwarfism community. She offers personal descriptions of the day-to-day challenges dwarf individuals face and portrays their accomplishments. Insightful and accessible, this work will prove a valuable resource for affected individuals, their families, and medical professionals—physicians, nurses, genetic counselors, social workers, psychologists, and medical students.

Autoren/Hrsg.

Adelson, Betty M.

Weitere Mitwirkende

Hall, Judith G.

Fachgebiete

• Sozialwissenschaften Psychologie Allgemeine Psychologie Kognitionspsychologie Emotion, Motivation, Handlung
• Medizin | Veterinärmedizin Medizin | Public Health | Pharmazie | Zahnmedizin Vorklinische Medizin: Grundlagenfächer Humangenetik

Inhaltsverzeichnis

Foreword, by Judith G. Hall, O.C., M.D.
Preface
Introduction
1. Medical Aspects
2. Psychosocial Aspects
3. The Birth of a Child: Parent Issues and Outreach
4. Organizations: From Self-Help to Advocacy
5. Lives Today
Appendixes
1. Dwarfism: Conditions and Descriptions
2. Resources: Medical and Support Groups
Notes
Index

Leseproben

"This book is one of the best, most thorough overviews published on dwarfism-related topics. The text is well written, but from the heart, in a way that makes it particularly useful for those who appreciate having scholarly information presented within a meaningful personal and social context. This is a volume that everyone dealing with short stature will want to read and then keep for future reference."—From the foreword by Judith G. Hall, O.C., M.D.

Über Autor(innen)

Adelson, Betty M.
Betty M. Adelson spent most of her career as a psychologist in private practice. She was formerly on the counseling staffs of Queens College and New York University's School of Education. She is the author of a cultural history, The Lives of Dwarfs: Their Journey from Public Curiosity toward Social Liberation.