Textbook of Palliative Care

2. Auflage 2024
ISBN: 978-3-031-48990-7
Verlag: Springer Nature Switzerland

Buch, Englisch, 2092 Seiten, Format (B × H): 183 mm x 260 mm, Gewicht: 4900 g

This second edition provides the most up-to-date information on all aspects of palliative care including recent developments (including COVID-19), global policies, service provision, symptom management, professional aspects, organization of services, palliative care for specific populations, palliative care emergencies, ethical issues in palliative care, research in palliative care, public health approaches and financial aspects of care. This new Textbook of Palliative Care remains a unique, comprehensive, clinically relevant and state-of-the art book, aimed at advancing palliative care as a science, a clinical practice and as an art.

Palliative care has been part of healthcare for over fifty years but it still needs to explained to many. Healthcare education and training has been slow to recognize the vital importance of ensuring that all practitioners have a good understanding of what is involved in the care of people with serious or advanced illnesses and their families. However, the science of palliative care is advancing and this new edition will contribute to a better understanding.

This new edition offers 86 updated or new chapters out of 108, written by experts in their given fields, providing up-to-date information on a wide range of topics of relevance to those providing care towards the end of life no matter what the disease may be. We present a global perspective on contemporary and classic issues in palliative care with authors from a wide range of disciplines involved in this essential aspect of care. The Textbook includes sections addressing aspects such as symptom management and care provision, organization of care in different settings, care in specific disease groups, palliative care emergencies, ethics, public health approaches and research in palliative care.

This new Textbook will be of value to practitioners in all disciplines and professions where the care of people approaching death is important, specialists as well as non-specialists, in any setting where people with serious advanced illnesses are residing. It is also an important resource for researchers, policy-and decision-makers at national or regional levels. Neither the science nor the art of palliative care will stand still so the Editors and contributors from all over the world aim to keep this Textbook updated so that the reader can find new evidence and approaches to care.

Zielgruppe

Research

Autoren/Hrsg.

Block, Lieve van den

MacLeod, Roderick Duncan

Fachgebiete

• Medizin | Veterinärmedizin Medizin | Public Health | Pharmazie | Zahnmedizin Pflege Palliativpflege, Sterbebegleitung, Hospiz
• Medizin | Veterinärmedizin Medizin | Public Health | Pharmazie | Zahnmedizin Medizinische Fachgebiete AINS Schmerzmedizin & Schmerztherapie
• Medizin | Veterinärmedizin Medizin | Public Health | Pharmazie | Zahnmedizin Medizinische Fachgebiete Palliativmedizin

Inhaltsverzeichnis

Approach and Nature of Palliative Care.- Quality of Life.- Global Aspects of Palliative Care.- Challenges and Future Directions of Palliative Care.- Organization of Palliative Care in Different Parts of the World.- Policies on Palliative Care in Different Parts of the World.- Palliative Care, Towards a New Definition.- Physical, Psychological/Psychiatric, Social and Spiritual Problems and Symptoms.- Pain and Pain Management.- Palliative Management of Breathlessness.- Fatigue.- Edema and Lymphedema.- Gastrointestinal Symptoms: Constipation, Diarrhea, and Intestinal Obstruction.- Gastrointestinal Symptoms: Nausea and Vomiting.- Cachexia/Anorexia and Feeding Difficulties.- Mouth.- Skin Symptoms.- Swallowing Difficulties.- Sleep Difficulties.- Psychological Symptoms.- Delirium and Palliative Care.- Neurological Symptoms.- Genitourinary Symptoms.- End-of-life Symptoms.- Gastroparesis and Cancer-Related Gastroparesis.- Advance Care Planning in Palliative Care.- Prognostication in PalliativeCare.- Spirituality in Palliative Care.- Access to Palliative Care.- Integrated Palliative Care: Clinical, Organizational, and Health System Perspectives.- Family Focused Care Span.- Grief and Bereavement.- Rehabilitation in Palliative Care.- Dietetics and Nutrition in Palliative Care.- Mouth Care.- Creative Art Making in Palliative Care.- Music Engagement and Therapeutic Music.- Sexuality and Intimacy.- Interprofessional Practice in Palliative Care.- Generalists and Specialist Palliative Care.- Nursing and Palliative Care.- Self-Care and Palliative Care.- End of Life Care.- Self-management in Palliative Care.- Education and Palliative Care, Overview.- Palliative Care in Rural Settings.- Home Care, Primary Care.- Palliative Care in Residential Settings.- Hospital Care.- Palliative Care in the Intensive Care Unit (ICU).- Volunteers in Palliative Care.- Palliative Care and Cancer.- Palliative Care and Neurodegenerative Diseases.- Palliative Care and Stroke.- Palliative Care in Heart Failure.- Palliative care of Respiratory Disease in Primary Care.- Palliative Care and Liver Diseases.- Palliative Care in Kidney Disease.- Palliative Care and Endocrine Diseases.- Palliative Care in Chronic Illness and Multimorbidity.- Palliative care in dementia.- Dealing with a Wound in Palliative Care.- Pressure Area Management in Palliative care.- End of Life Health Care Experiences of Indigenous People and Ethnic Minorities; the example of Canada.- Palliative Care, Frailty and Older People.- Palliative Care of Pediatric Populations.- Palliative Care and Intellectual Disability.- Palliative Care of Indigenous Peoples and Peoples of Different Ethnicity.- Hypercalcemia of Malignancy.- Thromboembolism and bleeding.- Spinal Cord Compression.- Superior Vena Cava Obstruction.- Acute Cancer Pain Syndromes in Palliative Care Emergencies.- Acute Dyspnoea.- Neutropenic Sepsis.- Seizures.- Tumor Lysis Syndrome.- Suicide and Attempted Suicide.- Transfer to a Preferred Place of Death.- ChallengingFamily Dynamics.- Delirium as a Palliative Care Emergency.- Distinguishing and Managing Severe Psychological and Psychiatric Distress.- End-Of-Life Decisions.- Sedation and Terminal Sedation.- Nutrition and Hydration in Palliative Care.- Ethics of home-coming.- Request for Assisted Suicide.- Public Health and Epidemiological Research in Palliative Care.- Development and Evaluation of Complex Interventions in Palliative Care.- Mixed Method Research in Palliative Care.- Ethics in Palliative Care Research.- Evidence based Practice in Palliative Care.- New Public Health Approaches to End of Life Care.- A public health approach to integrate palliative care into a country’s health care system: guidance as provided by the WHO.- Measuring Cost-Effectiveness in Palliative Care.- Financial Aspects of Inpatient Palliative Care.- Financial Aspects of Outpatient Palliative Care.- Serious Illness and Out-of-Pocket Spending.

Über Autor(innen)

Roderick Duncan MacLeod is the holder of several degrees and Fellowships including MB, ChB, DRCOG, MMedEd, PhD, FRCGP, and FAChPM. He has been involved in palliative care as a physician for over 35 years. He was appointed to New Zealand’s first Chair in Palliative Care as the inaugural South Link Health Professor in Palliative Care at the University of Otago, Dunedin School of Medicine in 2003, and in 2013 was appointed Conjoint Professor in Palliative Care at the University of Sydney and worked clinically as Senior Staff Specialist in Palliative Care for HammondCare in Sydney. He has been a Member of the Australasian Chapter of Palliative Medicine Education Committee, the NZ National Health Committee—Working Party on Care of People Who Are Dying, the NZ Palliative Care Expert Working Group, and the Council of the Asia Pacific Hospice Network. He was appointed to the Expert Advisory Group (Physician Education) and the Chapter of Palliative Medicine Committee of the Royal Australasian College of Physicians and the NZ Ministry of Health Palliative Care Advisory Group. He has also held a number of roles within Hospice NZ/Te Kahu Pairuri o Aotearoa. He has published 140 peer-reviewed articles in the field of palliative care in national and international journals and has written over 20 chapters for palliative care texts. In addition, he has been on editorial boards of international peer-reviewed journals in the field of palliative care and has reviewed manuscripts for over 25 different academic journals. He was appointed a Member of the New Zealand Order of Merit in 2015. In 2021, he was awarded the RoyalAustralasian College of Physicians, College Medal. He currently holds an honorary appointment in the Department of General Practice and Primary Health Care, University of Auckland, New Zealand.

Lieve Van den Block is Full Professor of Ageing and Palliative Care at the Vrije Universiteit Brussel (VUB), founding chair of the Ageing and Palliative Care Research Programme, and director of the End-of-Life Care Research Group of the VUB and Ghent University in Belgium (https:// www.endoflifecare.be/lieve-van-den-block). She holds a PhD in Medical Social Sciences and a master’s in Clinical Psychology. She has been involved in palliative care research for over 20 years, focusing on national and international public health, health services, and interventional research aimed at monitoring and improving palliative and end-of-life care. Her research is interdisciplinary in nature and located at the intersection of palliative care and long-term care. She has studied palliative care both in community and institutional settings and among different populations including cancer, dementia, and frailty.

She is Commissioner for the Lancet Commission on Person-centered Long-term Care for older people and chairs the Aging and Palliative Care Reference Group of the European Association of Palliative Care. She is expert member of theWHO Global Network on Aging, chair of the Brussels Expertise Centre on Palliative Care, and member of the Board of directors of Belgian’s largest cancer charity.

She has led and partnered in several EU-funded research projects, including the Horizon Europe EU NAVIGATE project, an intercontinental, interdisciplinary, and intersectoral research project investigating navigation programs to support older people with cancer, the EU FP7 PACE project (PAlliative Care for Elderly people in long-term care facilities) investigating nursing home palliative care, and three European Commission funded Marie Curie Doctoral Training Networks: European Intersectoral and Multidisciplinary Palliative Care Research Training (EURO IMPACT), Interdisciplinary Network for Dementia Utilising Current Technology (INDUCT), and Dementia Intersectoral Strategy for Training and Innovation Network for Current Technology (DISTINCT).

She has published over 200 peer-reviewed articles, is co-editor-in-chief of Springer’s Nature Textbook of Palliative Care, and editor or author of several other books including “Palliative Care for Older People: A Public Health Perspective.” Her work has been supported by grants from the European Commission, national fundamental and applied research foundations, and leading medical and health charities.She has received several scientific awards for her work including the prestigious Collen-Francqui Research Professor Chair, the Early Researcher Award of the European Association for Palliative Care, and the VUB Excellent PhD Supervision Award.