Young Onset Dementia Reconsidered: A Solution-Focused Approach

A Solution-Focused Approach
Erscheinungsjahr 2025
ISBN: 978-0-335-25249-7
Verlag: McGraw-Hill Education Ltd

Buch, Englisch, 293 Seiten, Format (B × H): 151 mm x 228 mm, Gewicht: 468 g

“A thought-provoking read, this is a timely spotlight on young onset dementia which offers us a winning blend of authentic, constructive and wide-ranging observations and evidence capturing aspects of life that matter most to people affected – maintaining autonomy, retaining identity, and being connected.”
Tessa Gutteridge, Chair, Young Dementia Network, Programme Director for Young Onset Dementia, Dementia UK

“This superb text is essential reading for anyone with an interest in young-onset dementia. [It is an] inspiring resource for people with young-onset dementia, family members, health and social care practitioners, researchers, commissioners and policymakers.”
Linda Clare, Professor of Clinical Psychology of Ageing and Dementia, University of Exeter, UK.

This solution-focused book, authored by leading experts from the UK, Canada, Norway and the Netherlands, delves into the many areas of life affected by dementia. When dementia occurs under 65 there are unique challenges and the impact on life is very different from diagnosis at a later age. The authors synthesise research to provide practical advice and information on living well, as well as the types of support available to those living with young onset dementia and their families.

Young Onset Dementia Reconsidered is accessibly written and split into three sections to reflect key outcomes important to people living with young onset dementia: to maintain control over their own lives, to retain a sense of identity and to feel connected with others.

This book:

- Began from conversations with people living with young onset dementia and amplifies their voices throughout
- Contains coverage of a breadth of areas, including the social, psychological, employment, financial, legal and creative, as well as health and symptom-related aspects
- Is grounded in evidence and research and takes a solution-focused approach.
Jointly edited by one person living with young onset dementia and one clinical-academic with long experience of working in services, teaching and researching, Young Onset Dementia Reconsidered is a book for all those with an interest in dementia: students, practitioners, professionals, researchers, carers, family, friends and people with diagnosed or possible young onset dementia.

The Reconsidering Dementia Series is an interdisciplinary series published by Open University Press that covers contemporary issues to challenge and engage readers in thinking deeply about the topic. The dementia field has developed rapidly in its scope and practice over the past ten years and books in this series will unpack not only what this means for the student, academic and practitioner, but also for all those affected by dementia.

Series Editors: Dr Keith Oliver and Professor Dawn Brooker MBE.

Jan Oyebode is Professor of Dementia Care at the Centre for Applied Dementia Studies, University of Bradford, UK where her current research focuses on how to provide better support for people with young onset dementia. She is also a member of the Young Dementia Network Steering Group.

George Rook has worked as an accountant, English teacher and school business manager. He was diagnosed with young onset dementia aged 62, and has since then been increasingly involved in activism, speaking and blogging about living with dementia. He is now also engaged in research projects. George learned to paint during Covid and gets huge satisfaction from it.

Autoren/Hrsg.

Oyebode, Jan

Rook, George

Fachgebiete

• Sozialwissenschaften Soziologie | Soziale Arbeit Soziale Arbeit/Sozialpädagogik Soziale Dienste, Soziale Organisationen

Inhaltsverzeichnis

List of figures, tables and boxes
About the editors
About the contributors

Lived experience
The Reconsidering Dementia Series
Preface
Acknowledgements
Acronyms and abbreviations

1 Introduction and overview
Jan Oyebode

2 What people living with young onset dementia told us
George Rook

Part 1 Maintaining Autonomy

3 Different diagnoses, different people, different needs
Nikki Zimmermann and Sebastian Crutch

4 How sensitive delivery of diagnosis can be empowering
Mary O’Malley and Janet Carter

5 How technology can help people living with young onset dementia
Torhild Holthe

6 Using cognitive rehabilitation to enable independence in daily life
Jackie Pool and Sue Evans

7 Legal and financial aspects of young onset dementia
Calum Macdonald

8 Having a voice in planning services
Andrea M. Mayrhofer

Reflections on Part 1

Part 2 Retaining Identity

9 Indigenous dimensions of dementia: considerations for culturally safe dementia care

Pamela Roach and Jennifer Walker

10 Young onset dementia and employment

Louise Ritchie, Laura Lebec and Rachel Allen

11 Meaningful activity

Jacqui Hussey and Jan Oyebode

12 Involving people with young onset dementia in research

Jacqueline Parkes, Laura Cole and Natasha Bayes

13 Maintaining identity over time when living with young onset dementia

Aud Johannessen and Kirsten Thorsen

14 The impact of young onset dementia on the identity and well-being of family carers
Christian Bakker and Marjolein de Vugt

Reflections on Part 2

Part 3 Being Connected

15 Maintaining positive relationships in families affected by young onset dementia

Vasileios Stamou

16 The well-being and identity of children and young people who have or have had a parent with young onset dementia

Pat Sikes and Mel Hall

17 Peer support

Clare Mason

18 Concluding thoughts

George Rook